Here's an update to my original post [ http://board.mfwbooks.com/viewtopic.php ... 196#p96196
We have found since my last post that my oldest was diagnosed with sensory processing disorder/low registration which causes a lot of her issues (ho-hum attitude, appearance of lack of interest, forgetfulness, inability to stay focused, etc.) I didn't realize how much it impacts daily life. This combined with her hearing loss requires we make adjustments to our day to help her cope with these things. She is not doing therapy. I am making our own changes and implementing sensory diet ideas at home. I also have to stay with her to keep her on task. She is not very independent yet.
My son was diagnosed with sensory processing disorder, expressive language disorder, ADHD-combined type, extremely delayed fine motor skills, other OT issues (core strength, motor delays, visual processing, self help skills,etc). He also has a hearing loss and needs physical therapy (with possible orthotics) to correct an issue with his feet. Whew! The neuropsychologist feels that all of this combined is the root of his tantrums. Imagine his level of frustration. Everything is hard and he is always being corrected. It makes for a frustrated little boy. His tantrums have improved considerably with my changing my reactions to his behavior. We are doing a lot of therapy with him to help him (and me) cope and find a way to teach him effectively. With his speech and hearing, it is very hard for him to do the blending. And, on Friday, he blended! We were over the moon. We danced around, screamed, acted all crazy in celebration. It was a good moment. We have a loooooong exhausting road ahead of us but those moments carry me. As posters advised, we are taking the K year as slow as necessary. We didn't stop entirely but we are going at a speed he can handle and we take breaks as needed. I am okay with that. I am realizing it is not a race. I have also had to become okay with the fact that he does not want to do any of the fun crafts.
Probably because it is hard with the fine motor, sensory, and attention issues.
That said, I could use some ideas on how to entertain him while I teach the olders. He does not want to join us for ECC and if I force it, it is counterproductive. He doesn't play well alone (which we are working on). He only wants to play video games
I really try to limit it but right now I am just trying to get through the day. Any suggestions? I know we need to limit screen time and encourage more productive "entertain yourself activities" but we aren't there yet. Working on it, but I could use any pointers here. We will be going to a counselor to help us cope with all of these issues, but until then....
Also, I am sure you have figured out that we are never "caught up" in the curriculum, which frustrates me. I am trying to embrace year round school to help with that. We are out of the house a lot for therapies and evals. I have to take a lot of time out of my day to attend to various issues and at home therapy needs. It's a lot and I am stressed, but I am happy to know what I am dealing with now. We attend a music class and a music lesson on Wednesday mornings and a co-op 2 Fridays per month. I hate to take that away because I think it is important as well, but I am ragged. My husband feels it is important to do those things also.
Sorry for the book, but wanted to update that we did look into the red flags and now we are trying to find our footing. Thanks for "listening"
Lori, it is nice to get an update on how you and your kids are doing.
I absolutely understand about the busyness that therapies bring. My son is 4. He was diagnosed with autism when he was almost 3, but we had started therapies for him when he was 1. We've done PT, OT, and ST. That first year after his diagnosis was crazy. I felt like we were out of the house, running to therapies all the time. I think we had therapies scheduled 4 days a week...one of the days was in-home therapy, but it still interrupted our day. We live in a small town about 25 miles from the nearest city where my son receives therapy. Over time, I have figured out how to better manage our schedule. I schedule therapies for my son 3 days a week and I keep 2 days with no therapies or appointments so that we know we have those 2 days at home, uninterrupted (usually) for schooling. Of course, we do school on my son's therapy days, as well, but we have to adapt a bit. For example, Tuesdays are our days to travel 25 miles for therapy. So, on those days, I schedule things we can take with us and that my daughters can work on in the therapy office while we are there for an hour and a half. Also, I do any audio things in the car as we travel to and from the city...it is an hour in the car to listen to Story of the World on audiobook, music CDs, or other audiobooks for read-aloud. I also try to schedule all of our doctor, dentist, orthodontist appts. etc. for Tuesday afternoons, while we are in the city. That way, we don't have to leave the house other days for appointments. There are exceptions, but for the most part, it has worked well. I just tell schedulers at the doctors' offices that Tuesday afternoons work best for me, and they are usually able to schedule us then.
So, I just wanted to give encouragement that even though it might feel like your son's therapies are running your life, you can take control and really work the schedule so that it works for you and your family, and so that you are still able to be home sometimes and accomplish the schooling that you need to.
Also, you mentioned your co-op and some other lessons. During this season of life with many therapies, you may want to consider limiting other activities. We, too, attend a co-op. Our co-op meets 2 Thursdays each month. Because of my son's therapies, that would be too much for me, so we requested that we attend just once a month, and the ladies in the co-op graciously agreed that it would be okay for us to do that. It doesn't seem like much to be gone just one extra day a month, but when you are running to therapies each week, even just one more day with commitments makes a difference.
So, maybe you can figure out a way to still be involved in your co-op, but to limit it a bit so you have more time at home. Just an idea for you. It has worked well for us.
Just wanted to give you encouragement, Lori, that God is sovereign. He knows your situation, and as you give it to Him, He will help you find the solutions that you need to meet your son's needs, the needs of your other children, and God will meet your needs, as well.
Hang in there!